Ethics Committee Literature Reviews

The Ethics Committee has identified the following literature reviews to help identify best-practice and appropriate standards for clinical management of pediatric surgical disease.

If you have questions, contact Erin Rowell.

The APSA Ethics Committee

View the current members of this committee.

Earn MOC CME from the Literature Reviews

Continuing medical education maintenance of certification self-assessment credit is now available for the Cancer, Critical Care, Ethics, Fetal, Outcomes and Trauma literature reviews.

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    *Subscriptions purchased prior to October 1 expire December 31. Subscriptions purchased October 1 or later expire December 31. 

Literature Reviews 

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Navigating Decisional Discord: The Pediatrician’s Role When Child and Parents Disagree
Bryan A. Sisk, James DuBois, Eric Kodish, Joanne Wolfe, Chris Feudtner
Pediatrics. June 2017, VOLUME 139 / ISSUE 6
Copyright © 2017 by the American Academy of Pediatrics

Ethical and End of Life Considerations for Neonates Requiring ECMO Support
Kirsch R, Munson D
Semin Perinatol. 2018 Jan 10. pii: S0146-0005(17)30146-5
PMID: 29331209 

Informed Consent in Decision-Making in Pediatric Practice.
Katz AL, Webb SA; Comittee on Bioethics.
Pediatrics. 2016 Aug;138(2).

PMID: 27456510

Responsible Surgical Innovation and Research in Maternal-fetal Surgery.
Antiel RM, Flake AW.
Semin Fetal Neonatal Med. 2017 May 24. [Epub ahead of print]
PMID: 28551276

Ethics, Emotions, and the Skills of Talking About Progressing Disease with Terminally Ill Adolescents:
A Review

Rosenberg AR, Wolfe J, Wiener L, Lyon M, Feudtner C. 
JAMA Pediatr. 2016 Dec 1;170(12):1216-1223.
PMID: 27749945 

International Variations in Application of the Best-Interest Standard Across the Age Spectrum
Laventhal N, Verhagen AA, Hansen TW, Dempsey E, Davis PG, Musante GA, Wiles A, Meadow W, Janvier A.
J Perinatol. 2017 Feb;37(2):208-213.
PMID: 27735929

Parental Refusal of Surgery in an Infant with Tricuspid Atresia
Konn AA, Patel A, Leuthner S, Lantos JD.
Pediatrics. 2016 Nov;138(5). 
PMID: 27940784

Two Infants, Same Prognosis, Different Parental Preferences
Antommaria AH, Collura CA, Antiel RM, Lantos JD.
Pediatrics. 2015 May;135(5):918-23. doi: 10.1542/peds.2013-4044. Epub 2015 Apr 6.
PMID: 25847802

A Qualitative Study Exploring Moral Distress Among Pediatric Resuscitation Team Clinicians:
Challenges to Professional Integrity

Tessy A. Thomas, DO, MBE; Satid Thammasitboon, MD, MHPE; Dorene F. Balmer, PhD; Kevin Roy, MD; Laurence B. McCullough, PhD
Pediatr Crit Care Med. 2016 Jul;17(7):e303-8. doi: 10.1097/PCC.0000000000000773.
PMID: 27182784

The ethics of neonatal research: an ethicist's and a parents' perspective
Janvier A, Farlow B.
Semin Fetal Neonatal Med. 2015 Dec;20(6):436-41. doi: 10.1016/j.siny.2015.10.003. Epub 2015 Oct 20. 
PMID: 26497942 [PubMed - in process]

The darkening veil of "do everything"
Feudtner C, Morrison W.
Arch Pediatr Adolesc Med. 2012 Aug;166(8):694-5. doi: 10.1001/archpediatrics.2012.175.
PMID:  22869401 [PubMed - indexed for MEDLINE]

Doctor, What Would You Do? An ANSWER for Patients Requesting Advice About Value-Laden Decisions
Tucker Edmonds B, Torke AM, Helft P, Wocial LD. 
Pediatrics. 2015 Oct;136(4):740-5. doi: 10.1542/peds.2015-1808. 
PMID: 26416929 [PubMed - indexed for MEDLINE]

Hospital Use in the Last Year of Life for Children With Life-Threatening Complex Chronic Conditions
Ananth P, Melvin P, Feudtner C, Wolfe J, Berry JG. 
Pediatrics. 2015 Nov;136(5):938-46. doi: 10.1542/peds.2015-0260. Epub 2015 Oct 5. 
PMID: 26438707
[PubMed - indexed for MEDLINE] PMCID: PMC4621793 [Available on 2016-11-01] 

Please Do Whatever It Takes to End Our Daughter's Suffering!
Clément de Cléty S, Friedel M, Verhagen AA, Lantos JD, Carter BS. 
Pediatrics. 2016 Jan;137(1):1-6. doi: 10.1542/peds.2015-3812. Epub 2015 Dec 7. 
PMID: 26644491 [PubMed - in process]